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2025 Spring Newsletter
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AL Amyloidosis
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Amyloidosis Awareness Items
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Webinar: Updates in AL Amyloidosis
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Hereditary Amyloidosis
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Patient Education Activity
Read More HereWhat is Amyloidosis?
AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Featured Patient Story
hATTR Diagnosis
Jaime Kaplan
My older sister, Barbara Kaplan, started having shortness of breath in October of 2019. She went to her internist in Miami, Florida, and a chest x-ray which showed fluid in her lungs. Her internist immediately referred her to a cardiologist who suspected amyloidosis. She was diagnosed a few days later and was started on Vyndamax shortly after. Her 3 siblings...
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2025 Spring Newsletter
May 21, 2025
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Calendar & Upcoming Events
Seattle Amyloidosis Support Group Meeting
SAVE THE DATE: PNW Support Group Gathering
Contact Sally Cox to RSVP at 206-819-3025
Webinar: Office Hours with Dr. Mazen Hanna
Webinar Session: Wednesday, August 6, 2025 at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
Office Hours: Dr. Mazen Hanna Cardiologist from the Cleveland Clinic
Speaker: Dr. Mazen Hanna
Webinar: Education on PBMs and how they impact our prescriptions
Webinar Session: Wednesday, July 30, 2025 at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
Cole’s Story and Education on PBM’s and how they impact our prescriptions
Speaker: Bill Schmidtknecht
Amyloidosis Videos
This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.
Featured Product
Ribbon Awareness Pin
Wear your pin proudly and show everyone you are an amyloidosis ambassador.
$8.00