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AL Amyloidosis
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Hereditary Amyloidosis
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Patient Education Activity
Read More HereWhat is Amyloidosis?
AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Featured Patient Story
As we look toward the future
Glenn Dale Galloway
In May of 2012, my father received a diagnosis that no one saw coming: Heavy Chain Amyloidosis. He had been sick for years, decades even. He had atherosclerotic plaques throughout his heart and carotid arteries and suffered GI symptoms that would cause severe bleeding and nausea. I remember my father being sick for most of my life, but despite his...
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2025 Spring Newsletter
May 21, 2025
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Calendar & Upcoming Events
Seattle Amyloidosis Support Group Meeting
SAVE THE DATE: PNW Support Group Gathering
Contact Sally Cox to RSVP at 206-819-3025
Webinar: Office Hours with Dr. Mazen Hanna
Webinar Session: Wednesday, August 6, 2025 at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
Office Hours: Dr. Mazen Hanna Cardiologist from the Cleveland Clinic
Speaker: Dr. Mazen Hanna
Webinar: Education on PBMs and how they impact our prescriptions
Webinar Session: Wednesday, July 30, 2025 at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
Cole’s Story and Education on PBM’s and how they impact our prescriptions
Speaker: Bill Schmidtknecht
Amyloidosis Videos
This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.
Featured Product
One day at a time T-Shirt
FLASH SALE: Pick up this shirt for $15.00 while supplies last! Wear our shirt and increase amyloidosis awareness in your community! 100% cotton - heathered oatmeal
$15.00
S, M, L, and XXL