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The ABCs of Amyloidosis: The Journey From Diagnosis to Treatment

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WEBINAR: Updates in AL amyloidosis: Fast Forward in 2024!

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AL AMYLOIDOSIS

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2025 Spring Newsletter

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2025 Virtual Run/Walk

Featured Patient Story

Denelle Belle Isle

I am grateful beyond measure!

It was Memorial Day weekend 2023 and our annual family vacation in Myrtle Beach, SC. The perfect time to hit the beach, play in the waves and pools, build sandcastles, and reunite with my children, their spouses, and my grandchildren. I wasn’t feeling 100%, but thought the fatigue was due to seasonal allergies. The shortness of breath had been something I noticed for some time but chalked it up to being out of shape. My stomach had also been a little wonky and I never quite knew how food would sit,

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Latest News Headlines

Plain Language Summary of Publications (PLSPs)

Below is a resource for our patients:

Taylor & Francis is a publisher of peer-reviewed medical journals. We publish a type of article called Plain Language Summary of Publications (PLSPs)....

Pfizer Mounts Defense of Cardiac Blockbuster as Alnylam, BridgeBio Enter Market

Alnylam and BridgeBio are competing for people who are switching from Pfizer’s blockbuster ATTR amyloidosis drug tafamidis while all three companies are fighting for new patients.
A three-way tussle has...

2025 Spring Newsletter

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Calendar & Upcoming Events

Annual Virtual Run/Walk/Roll
June 1 - July 31

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