2025 Virtual Run/Walk
Register Now
2025 Spring Newsletter
Read Now
AL Amyloidosis
Read More
Amyloidosis Awareness Items
Shop Here
Webinar: Updates in AL Amyloidosis
Watch Now
Hereditary Amyloidosis
Get the Facts Here
The Amyloidosis Channel
View Here
Patient Education Activity
Read More HereWhat is Amyloidosis?
AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Featured Patient Story
Beyond Imagination
Edgar Baxton II
Edgar Baxton, 65, is a health teacher at the Fort Dodge Middle School in Fort Dodge, Iowa. He also coaches junior varsity volleyball at Fort Dodge Senior High. He was diagnosed with amyloidosis in 2015 and needed a heart and liver transplant to save him. What transpired through his medical journey was a true out-of-body experience that changed his life...
Read the Full StoryLatest Headlines
2025 Spring Newsletter
May 21, 2025
Be sure to catch up on the latest happenings in our fall newsletter here!
Calendar & Upcoming Events
Seattle Amyloidosis Support Group Meeting
SAVE THE DATE: PNW Support Group Gathering
Contact Sally Cox to RSVP at 206-819-3025
Webinar: Office Hours with Dr. Mazen Hanna
Webinar Session: Wednesday, August 6, 2025 at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
Office Hours: Dr. Mazen Hanna Cardiologist from the Cleveland Clinic
Speaker: Dr. Mazen Hanna
Webinar: Education on PBMs and how they impact our prescriptions
Webinar Session: Wednesday, July 30, 2025 at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
Cole’s Story and Education on PBM’s and how they impact our prescriptions
Speaker: Bill Schmidtknecht
Amyloidosis Videos
This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.
Featured Product
Logo T-Shirt
FLASH SALE: Pick up our classic T-Shirt for $15.00 while supplies last! Wear our shirt and increase amyloidosis awareness in your community! 50% cotton, 50% polyester.
$15.00
S, M, L, XL, and XXL